“I don’t want to carry gratitude in seasons. I want to carry it in my bones. I want it to rest on my tongue like it is a language that I never stop speaking.” Happy Thanksgiving! I saw this quote the other night and it really resonated with me. Yes, Thanksgiving is a wonderful time to celebrate all of the blessings in your life, and yes we all know we are of course just as thankful throughout the remainder of the year, but do we really focus on that gratitude outside of the holiday season? A lot of us...
The Backiel’s in Boca!
“Parents don’t really go on vacation. They just take care of their kids in a different city.” YUP. Ain’t that the truth? But, taking care of Madison in the warmth of Florida was a hell of a nice change lol! Last week the three of us ventured out for our first family vacation and first time flying with our queen! John and I were nervous wrecks about it. We went back and forth about whether or not to actually go for months. Madison is just so complex it’s scary to break out of our comfort zone with her, but...
Madison vs. the EEG
So I know I owe you guys all the details of our first family vayk, & I promise I’ll get to that, but in true Madison fashion this week has thrown us another unexpected curveball! Yesterday Maddie and I were excited to get back into our normal routine after returning home from vacation over the weekend. Before our day really began I touch based with her neuro team to update them on the status of the ketogenic diet process and to share some updates on her current seizure activity. When we met with the neurologist at CHOP on Halloween...
Traveling with a Special Needs Child
Welp! We just completed our first trip that included air travel with Maddie girl! John and I debated cancelling this trip many times. Would the stress of traveling with Madison actually outweigh the point of a “relaxing” vacation? We were nervous my friends. VERY nervous. But it went fine! While I will divulge all of the details of our first family vacation in another post (as it was not without some bumps in the road), I wanted to share some travel tips when flying or going a long distance with a child, especially a special needs one! So here...