Vision Therapy

So you may have seen me share the below video of Maddie girl using the switch pad earlier in the week (sorry not sorry I keep posting about it!), but she illustrated some awesome new brain connections to us in her therapy session last week! She’s still been teething and quite frankly, pretty moody, so when we went to speech on Monday I wasn’t sure how the session would go. She wasn’t too interested in eating, but because her therapist is awesome, she suggested we work on vision since Madison was awake. Madison has CVI, which is a brain...

2018 in Review

I’ve been racking my brain trying to determine how to write this post. How to reflect on a year that has in all honesty, been incredibly hard on our family. How to really sort all of the bad from good and heartbreak from hope. I want to start the new year on a good note, which is hard to do when the end of this year has been particularly painful for us. So I’m gonna start with the not so great moments in the hopes that if I save the better moments for the end, those will be what...

Holiday Gift Guide

Dear Santa, What do you get a child with special needs? A child that might be immobile, have vision or hearing issues, epilepsy, developmental delays, and physical hardships? The answer is not a one size fits all, and can be equally as hard for parents to think of things to engage their child, as it is for friends and family members who know even less about what that child may really need. So in the spirit of the holidays, I’ve put together a list of some items that might work for the special needs child in your life! Although...

A Speech Epiphany

You guysssssss, I took Madison to a new facility for a speech evaluation yesterday and it was absolutely INCREDIBLE. Like one of the most helpful and positive appointments I’ve taken her to in a long time. If you read my post on relearning to eat, you know Madison had to work very hard post meningitis on getting her ability to suck back. We spent a lot of time in speech therapy, had a g tube, and eventually got her strong enough to eat orally again. We were discharged from speech early on because her therapist saw no issues with...

Engaging a Special Needs Child

Buying toys for most kids is easy and fun. What are they interested in? How old are they? What milestones have they met or are they close to meeting in which a particular toy might engage them further? While all valid questions, most of these don’t matter for Madison. Because she is so globally delayed, and her brain functions far differently, when it comes to buying toys for her, we need to be strategic. Each toy is an opportunity for therapy, a chance to build new neuron connections, and to ultimately help her reach her fullest potential. She doesn’t...

One Year Home!

One year ago today, after almost 70 days of living in the hospital, we returned home with our little miracle girl. It wasn’t at all how we imagined the first 2 months of having a new baby to go. I honestly look back and still can’t believe that I walked out of my house on July 20th , and did not return until September 26th. I can’t believe that we lived in a tiny hospital room, sleeping on a small bed in the windowsill, eating the same take out food, holding our baby in the same chair, constantly checking...

Meet Madison: Cortical Visual Impairment

Happy Friday! Madison has been teething hardcore this week, awake at all hours & hating all food, but she’s finally napping so I thought I’d continue my “Meet Madison” series with another one of her diagnoses: Cortical Visual Impairment. CVI is a condition in which there is a decreased visual response due to a neurological problem affecting the visual part of the brain. According to the American Association for Pediatric Ophthalmology & Strabismus, someone with normal vision uses their eyes to take a picture of an object. This message is sent to the brain through optic nerves, and the...