Why I Love Social Media

I love social media. There, I said it. Yes, it can be full of politics, and petty drama, and rude comments, and insensitive or uneducated remarks. And yes, it can be mindless and addicting in an unproductive but super fun way. (You can bet my hubby & I send each other funny memes while we sit in the same room lol). But it can also be incredibly connecting and wonderful on a much higher level. It can tether us to people and organizations that we may never have known. And for a special needs mama like me, those sort...

Always Worth It

If you follow me on Instagram then you know I spent last week in Maine for a little fall family getaway! We had this trip planned for months, and almost cancelled it countless times because so many things have been popping up, but ultimately decided we deserved some time away together. While we were away I decided I wanted to share a blog post about the importance of making memories when you have a medically complex child, but as our trip ended with a tough day and then a TON of traffic leading to a huge seizure filled meltdown...

So Long Sweet Summer – An Update on Maddie Claire

Fall officially starts next week, and for a girl who has always been all about summer, I’m strangely really looking forward to some cooler temps and a slower pace around here. Once cold and flu season is upon us, I typically schedule less appointments for Madison and don’t take her out quite as much since she’s so high risk. This summer has been pretty overwhelming, sometimes in a good way, sometimes not. But I’ve realized I haven’t shared a real update on Miss M in a while since we’ve been so busy! And what better way than to do...

OBX 2019

Vacationing with a special needs child can really be hit or miss. Madison’s stability varies and unfortunately when you book a trip there’s no way to know if she’ll be having a good week or a bad one by the time that trip rolls around. We traveled to Florida in November and while it was relaxing to soak up the warm weather, Madison wound up having awful nights almost everyday. She barely slept, had seizures, and seemed uncomfortable a lot during the trip, which made things hard for John and I. We booked a beach house in OBX knowing...

The Truth About Mother’s Day

Mother’s Day is just around the corner. A day to celebrate the strength and love of all the moms and mom figures in our life. A day that is truly special for many. But what about for those that have lost their mother? Those estranged from their mothers? Those longing to be a mother? And those, like me, who’s journey into motherhood hasn’t been like what they had hoped or dreamed of. For us, this day can stir up a wide range of emotions and be extremely difficult. Last year was my first Mother’s Day with Madison, and it...

2018 in Review

I’ve been racking my brain trying to determine how to write this post. How to reflect on a year that has in all honesty, been incredibly hard on our family. How to really sort all of the bad from good and heartbreak from hope. I want to start the new year on a good note, which is hard to do when the end of this year has been particularly painful for us. So I’m gonna start with the not so great moments in the hopes that if I save the better moments for the end, those will be what...

Holiday Gift Guide

Dear Santa, What do you get a child with special needs? A child that might be immobile, have vision or hearing issues, epilepsy, developmental delays, and physical hardships? The answer is not a one size fits all, and can be equally as hard for parents to think of things to engage their child, as it is for friends and family members who know even less about what that child may really need. So in the spirit of the holidays, I’ve put together a list of some items that might work for the special needs child in your life! Although...

Making Memories

When you have a special needs child, most of your time revolves around therapies, doctor appointments, phone calls, specialists, and pharmacy runs. It can be quite draining and unfortunately leaves so little time to actually just BE with your child and enjoy them. It’s super important to constantly stimulate and work with your child when they need that for their development, but it’s also equally as important to give yourself “normal” moments to play and snuggle and relax with them too. There’s even an extra sense of that hustle and bustle during the holidays, but enjoying the season and...

Thankful in all Circumstances

“I don’t want to carry gratitude in seasons. I want to carry it in my bones. I want it to rest on my tongue like it is a language that I never stop speaking.” Happy Thanksgiving! I saw this quote the other night and it really resonated with me. Yes, Thanksgiving is a wonderful time to celebrate all of the blessings in your life, and yes we all know we are of course just as thankful throughout the remainder of the year, but do we really focus on that gratitude outside of the holiday season? A lot of us...

The Backiel’s in Boca!

“Parents don’t really go on vacation. They just take care of their kids in a different city.” YUP. Ain’t that the truth? But, taking care of Madison in the warmth of Florida was a hell of a nice change lol! Last week the three of us ventured out for our first family vacation and first time flying with our queen! John and I were nervous wrecks about it. We went back and forth about whether or not to actually go for months. Madison is just so complex it’s scary to break out of our comfort zone with her, but...