Cutie Patubie

It’s Feeding Tube Awareness Week, and how fitting, because our brave girl will be getting her g-tube on Friday. What’s a g-tube? A g-tube or gastrostomy tube is a feeding tube placed in the abdomen to deliver nutrition directly to the stomach. There are lots of conditions that might cause someone to need a feeding tube either temporarily or permanently, including: cardiovascular, developmental, endocrin, genetic, GI, immune, neurological, metabolic, swallowing, respiratory, and structural. In the medical world a feeding tube is low on the list of scary interventions. Madison has been fed by an NG tube many times. We...

Meet Madison: Learning to Eat

Happy September Friends! Because meningitis left Madison with many complex issues, it could literally take me pages to explain them all. I do however think it’s important to learn more about the things that have affected or will affect her development as she grows. That being said I hope you’ll all bear with me as I post on each complication separately. These posts may seem long, but trust me, I’m already leaving out a lot of detail lol! So, this will kick off my Meet Madison series! I hope you find her as strong & amazing as her father...