Meet Madison

Madison Claire was born on July 9, 2017 at 3:51 pm. She weighed 6lbs 6oz and stood 19 inches tall. She was perfect, beautiful, and healthy in every way. The answer to our prayers. Our first child.

On July 20, 2017 she was diagnosed with late onset GBS Meningitis, and has since been left with a severe brain injury and numerous complications. While this blog serves to share her journey, we also wanted a place for her supporters to gain a quick recap on how she has been affected.

Meet Madison


1. GBS Meningitis Survivor

2. Epilepsy: Infantile Spasms

3. Endocrin Disfunction Including:



•Diabetes Insipidus

4. CVI

5. Sleep Issues

6. Global Developmental Delays

Care Team:

1. Primary Care Physician

2. Neurologist

3. Endocrinologist

4. Gastroenterologist

5. Nutrionist

6. Hematologist

7. Ophthalmologist/Neuro-Opthalmologist

8. Physiatrist


1. Occupational Therapy

2. Physical Therapy

3. Speech Therapy

4. Vision Therapy

5. Anat Baniel Method

6. Chiropractics