Cutie Patubie

It’s Feeding Tube Awareness Week, and how fitting, because our brave girl will be getting her g-tube on Friday. What’s a g-tube? A g-tube or gastrostomy tube is a feeding tube placed in the abdomen to deliver nutrition directly to the stomach. There are lots of conditions that might cause someone to need a feeding tube either temporarily or permanently, including: cardiovascular, developmental, endocrin, genetic, GI, immune, neurological, metabolic, swallowing, respiratory, and structural. In the medical world a feeding tube is low on the list of scary interventions. Madison has been fed by an NG tube many times. We...

Praying for Poop

What.A.Week. Actually, if I’m being honest these last two weeks were something else. If you’ve been following along you know we had an intensive therapy week blocked out for Madison 2 weeks ago already that got all messed up due to teething pain. Welp, turns out it wasn’t just teething that was bothering Maddie girl. Her tooth had cut by the weekend but she was still crying in agony ALL day and night. The way she was arching her body indicated to me it was stomach related, but of course you never know with her! Also, unfortunate timing, but...